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A Dream Among Dreams: Taking On Yoga’s Headstand
“Don’t be afraid of the space between your dreams and reality. If you can dream it, you can make it so.” I dream a lot, but one dream stood out recently: I saw myself in a handstand position –...
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Julie Flygare Writes Cover Narcolepsy Story for Caring Voice Coalition’...
The Summer 2012 edition of Community Magazine is out and hotter than ever! I really enjoyed writing the cover story and working with Caring Voice Coalition’s team – they are passionate about patients!...
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Before I Die…
“Before I die…” caught me off-guard on Saturday. I was driving down 14th street NW in DC, when I slammed on the brakes and pulled over. I didn’t know what to expect, but the beautiful messages of hope...
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Heartbeats: Finding Mine Again
“Where there are no words… know the silences are carrying the thoughts and prayers of all who love you.” -Dawn Dais “What is this?” I wondered, placing my hands on my collar bone to get as close as...
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Julie Flygare Speaks On Rare Disease Patient Advocate Panel
[Photo: Julie with Dominique Friend, Sickle Cell Disease Advocate] This Wednesday, I had the honor of speaking on the Patient Advocate Panel at the “InnovationPharm Event” hosted by Siren Interactive,...
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Julie Flygare Writes Narcolepsy Patient Perspective Guest Blog Post on...
I’m thrilled to share my guest blog post, “Notes on Narcolepsy: Part 3 – From the Patient’s Perspective,” on Psychology Today’s “The Land of Nod” Blog by Dr. Shelby Harris. Dr. Harris is a friend, a...
View ArticleJulie Flygare Launches Narcolepsy Awareness Video Campaign
I’m so thrilled to launch my narcolepsy awareness video series. I’ve dreamed of this project for many moons. It’s surreal to see it through. Watch my introductory video here or on YouTube. Thank you...
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Meet Me at the Lincoln Memorial: National Sleep Walk on March 3 2013
In honor of National Sleep Awareness Week, join me for the 3rd Annual National Sleep Walk in Washington DC! Celebrating sleep health & sleep disorder awareness When: Sunday March 3, 2013 at 10:00...
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Sleep Walk Jacksonville Shines Light on Sleep Health & Sleep Disorders –...
Over 40 people gathered to raise awareness about sleep health and sleep disorders in sunny Jacksonville, FL on March 8, 2014! Sleep Walkers and canine friends in tow, gathered at Bull Park in Atlantic...
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Viral Narcolepsy with Cataplexy Video
A video of a young woman with narcolepsy and cataplexy has gone viral. Watch below or on YouTube. Watch this video on YouTube. This is a powerful video and I am grateful to Sarah Elizabeth for bravely...
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WATCH NOW: MedX 2015 Ignite! Talk by Narcolepsy Advocate, Julie Flygare
Watch this video on YouTube. I’m thrilled to share my 5-minute Ignite! Talk from Stanford Medicine X 2015. Please share with friends and family to raise narcolepsy awareness...
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2018: A Groundbreaking Year for Narcolepsy Research & Drug Development
“We are witnessing a revolution of our understanding of narcolepsy.” – Dr. Emmanuel Mignot, M.D. Ph.D., Director of the Center for Sleep Sciences and Medicine, Stanford University 2018 was an exciting...
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